A national coalition of providers, clinicians, families and advocates

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Share Your Story

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Share Your Story
Why It Matters

Help Turn Insurance Barriers Into a Record for Change

Have you or your family experienced an insurance claim denial, a premature treatment discharge, or a billing dispute involving behavioral healthcare?

BHDA is collecting documented experiences from families, healthcare providers, and clinicians to identify patterns in insurance practices and support research and advocacy efforts.

Your experience matters. Every submission can help build a clearer picture of the challenges people face when seeking or providing behavioral healthcare.

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What You Can Share

Your Experience Is Evidence

A claim denial

Tell us about a treatment or service your insurance company refused to cover.

A forced discharge

Describe a situation where coverage ended while further treatment was still needed.

A billing nightmare

Share experiences involving delayed payments, underpayments, reimbursement disputes, or repeated billing complications.

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It Takes Ten Minutes, and It Is the Whole Case
Nothing BHDA publishes exists without the records members send. If you have one, this is what it is for.
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Who We Represent

The Denial Letter in Your File Is Evidence

Most people file the letter and move on because there is nothing else to do with it. There is now. BHDA collects denials, forced discharges, and billing disputes from providers and families, and turns them into the documented record that research and reporting are built on.
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When a single family describes a denial, the plan’s response is that the case was unusual and the decision was clinical. That answer works once. It does not work against a dataset.

What BHDA needs is volume and detail. The date, the plan, the level of care requested, the stated reason for denial, what happened next, and whether an appeal was filed and how it ended. Those fields, repeated across hundreds of submissions, produce something that can be analyzed rather than merely retold.

Why Individual Accounts Matter

One Story Is Anecdote. Four Hundred Is Methodology.

Providers can submit at scale. Families can submit one. Both are useful.

What We Are Asking For

Three Categories, and What Each One Should Include

Claim Denials

A request for coverage that was refused. Include the level of care requested, the plan name, the date, the stated reason for denial, and the appeal outcome if there was one.

Premature or Unsafe Discharges

Coverage terminated while treatment was still clinically indicated. Include the authorized length of stay, the clinical recommendation at the time, and what happened after discharge.

Billing and Reimbursement Disputes

Reimbursement below contracted rates, retroactive recoupment, repeated documentation requests, or payment delays. Providers should include the pattern rather than a single claim where possible.

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What Happens to What You Send

You Decide How Far It Travels

Every submission is reviewed by BHDA staff before it enters the research database. Patient identifying information is removed during that review. Aggregate findings are published. Individual accounts are never published, quoted publicly, or shared with journalists or legislators without separate written permission from the person who submitted them.

The submission form includes a permission selection, and the default is the most restrictive option. You can change your permission or withdraw your submission at any time by contacting us.